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You’ve
been told that you have cancer. You may
have seen it coming, but more likely
this news came out of nowhere to
frighten you and shake up your world.
For your
convenience, we have provided a mini
version of "Chemotherapy and Radiation
for Dummies". Please note that
Dr. Humberto Fagundes and Dr.
Alan Lyss
receive no revenue from the sale of this
book.
The full edition
of "Chemotherapy
and Radiation for Dummies"
discusses and reviews:
-
Taking time to absorb
the news
- Finding your way in a new
culture
- Sorting out treatments and
side effects
- Building a support team
-
Changing to reflect a new perspective
Cancer! How Can that Be?
Making
Peace with Your Diagnosis
Registering Your Emotions
Telling
Family and Friends
Gathering
Information
Shopping for Cancer
Specialists
Embrace a New Culture
Considering Options
Getting
Started on Chemotherapy
Trying on
Radiation Therapy for Size
Putting
Together a Support Team
Practice Good
Nutrition
Tending to Your Spirit
Beyond Cancer Treatments
Beginning
Anew
Returning to Square One
Making Peace with a New You
Cancer! How can that be?
Here’s how: The Centers for Disease
Control reports that more than 18
million new cases of cancer have been
diagnosed since 1990, and the government
agency estimates that at least 1.3
million new cases will be diagnosed in
2005. One out of every four Americans
dies of cancer. In fact, the American
Cancer Society announced in January of
2005 that cancer has surpassed heart
disease as the leading cause of death
for people under 85 in the United
States.
On the other hand, more than ever
before the words cancer and death do not
necessarily belong in the same sentence.
Each day brings news of improvements in
screening tests and in treatments. And,
happily, survival rates for cancer are
at an all-time high in the United
States. So, instead of spending time and
energy asking “Why me?”, we encourage
you to take a deep breath and get ready
to begin your journey through cancer
treatments.
In this book, the full edition of
Chemotherapy and Radiation for Dummies,
we talk first about taking time to come
to grips with your diagnosis. Then we
offer suggestions on how to choose a
doctor. Next, we present a road map of
the rest of this book, where every twist
and turn on your journey is clearly
marked.
Making Peace with Your Diagnosis
The longest journey begins with a
single step, or so an ancient Chinese
proverb tells us. You have many steps in
store as you make your way through the
coming months. But before you take the
first step, you have an important task.
Registering Your
Emotions
“First,” says one woman we know who was
diagnosed with cancer in 1997, “you
scream.” She is right, even if that
scream is silent. This is a logical
emotional response. After all, you have
never before heard the words, “You have
cancer.” When you do hear these
terrifying words, you may have to ask
that the doctor repeat the bad news.
Some people recall that on first hearing
them, these words sound dim and far
away. Others report that their bodies
begin to tremble involuntarily. And
others appear to remain stonily silent,
even as their minds race. Whatever your
first reaction, you need time to make
peace with your diagnosis.
Taking time to process the
news
More
likely than not, you won’t be thinking
clearly at first. You may start to tally
up the people you know who have died of
cancer, and you probably will wonder if
you’re going to die, too. At this point,
you simply don’t have enough information
to know what the future holds. You may
find yourself totally focused on the
diagnosis, but that focus may be
chaotic, with hope and fear fighting for
your attention even as you try to frame
important questions for your doctor.
Remember
Give
yourself a break. Adjusting to the news
that you have cancer takes time.
Complete acceptance if there is such a
thing won’t come in a day or a week or
even a month, but gradually, you will
adjust to the diagnosis. Long before
that happens, you may find yourself
heading into the operating room for
cancer surgery or preparing for your
first chemotherapy or radiation
appointment. Don’t be surprised if, from
time to time, you experience the same
shock and fear all over again that you
felt when you first heard the news.
Experiencing a range of emotions
About that recurring shock and fear:
These are completely normal emotions. In
fact, you likely will go through
repeated periods of denial, anger,
bargaining, depression, and acceptance.
You may recognize these as the stages
that people experience when confronting
death. In this instance, you are
experiencing the loss of life as you
know it, the loss of good health, and
the loss of feelings of immortality, so
it makes sense that you experience these
stages, even if you have treatable
cancer.
Tip
Expect to
take more than one ride on the emotional
roller coaster as you move back and
forth between a range of feelings. This
process definitely involves taking two
steps forward and one back. Over
time, you will come to recognize when
your emotional well-being is at risk,
and you will take comfort in knowing
that a period of emotional upset most
likely will be followed by a period of
calm.
Telling family and friends
Early on, after you have processed the
news about your diagnosis and are ready
to talk about it, you likely will want
to tell family members and close friends
so they can make themselves available to
provide emotional support and practical
help as well. Many people who are newly
diagnosed also want to speak with
someone who has had cancer, someone who
already has been through treatments and
lived to tell the tale. In fact, you may
find yourself having an exceptionally
keen interest in hearing these tales! If
you don’t know who to call, you may want
to ask your doctor if she can have a
survivor get in touch with you.
Remember
This is a good
time, as you begin to gather information
about your diagnosis and potential
treatments, to talk with someone who has
been there. That said, every individual
for a variety of reasons experiences
cancer and the treatments differently,
so remember that the details of someone
else’s story may not apply to you at
all. You also may want to speak with
your boss, as your work schedule and
obligations may be directly affected by
your treatments. Who else needs to know?
That depends on what type of person you
are: The type who needs to tell as many
people as possible, or the type who
wants to tell as few people as possible.
You know yourself best and will act
accordingly.
Gathering Information
Knowledge is power! In this book, the
full edition of
Chemotherapy and
Radiation for Dummies, we help you get
acquainted with the facts about cancer,
which actually is more than 100
different diseases, and we describe the
tests available to help determine the
best treatment for you.
Up until the
moment of your diagnosis, you may not
have known much about cancer, what it is
or how it works. Now, of course, you
want to find out more so you can have an
idea about what the coming year holds
for you. That’s a good, positive
approach. A poster passed among people
going through cancer treatments reads,
“When you know the facts, you can make a
plan.”
Before you make your plan,
your doctor will provide you with
specific information about your cancer
and recommend appropriate treatments. A
number of sources can supply general
information, including
- This book
- Other books
- Free booklets published by
health agencies
- Web sites
- Newspaper and magazine articles
Some people whip through every bit of
reading material available on the type
of cancer that they have. Others confine
their reading to material that
specifically relates to the immediate
situation. (We think the latter is a
wiser approach.)
Remember
You don’t have to learn enough to
earn a degree in cancer, and you don’t
have to mold yourself into the perfect
patient. Your job is to educate yourself
about your specific cancer, get through
your treatment, and get on with your
life.
Shopping for Cancer Specialists
When we say that it is your job to
educate yourself about your cancer and
your treatments, please don’t think that
the responsibility rests entirely on
your shoulders. You will have help, a
lot of it. Some people first learn that
they have cancer from a surgeon or
another specialist. When it comes time
to do the tests that determine the
extent of the cancer, you need to see a
medical oncologist, a medical specialist
who treats cancer. If radiation therapy
is recommended for you, your medical
oncologist will refer you to a radiation
oncologist, a medical specialist who
treats cancer patients with radiation
therapy.
Finding good
doctors
These
cancer specialists and other doctors
along the way will direct your care and
serve as important members of your
support team. Of course, before you can
build good relationships with them, you
have to choose the doctors. A number of
factors come into play, including:
-
The type of cancer you have
-
Your age
-
Your general health
-
The
number of doctors or medical centers
available where you live
-
Your
insurance coverage, or lack of it
Obviously, you want the best care
that you can get. Given the state of
healthcare today, some choices will be
up to you and some will not, no matter
what your specific circumstances. In any
case, you most likely don’t want to
choose a doctor simply by opening the
telephone book and picking one with an
office close to your home. Here are
some sources to help you choose your
cancer doctors:
- Your primary care doctor (internist
or family doctor) or surgeon
- The referral department of a large
medical center
- Your local medical society
- Professional medical associations
- A
relative or friend who has personal
experience with cancer
When
you have a name or two in hand, make an
appointment for a consultation. Ask the
receptionist what you need to do to make
any test results, x-rays, or surgical
reports available to the doctor. After
that information is gathered, sit down
with the doctor and hear what he has to
say.
Tip
If you have a friend or family
member who can accompany you for your
first visit to the oncologist, take
advantage of that help. Another pair of
oars could be helpful as you navigate
these unfamiliar waters!
Afterwards,
think about what you heard. Think about
how you felt while you were hearing it.
Think about spending the next several
months carrying out a treatment plan
under the direction of this particular
doctor. If you have found a good fit for
you, then proceed.
Tip
If for any reason you’re not
satisfied with what you hear, or you are
uncomfortable about how you feel, make
an appointment with the next doctor on
your list.
Second opinions are
common in oncology, and most oncologists
expect and encourage you to seek one,
just so you are comfortable as you
proceed with your treatment. A good
closing question with the oncologist is
“Who would you go to see if you were me
and you wanted to be sure that you were
on the right path?” If you think that
the doctor is uncomfortable with this
question, move on!
Preparing to
Embrace a
New Culture
After you have chosen a doctor, you quickly will become
aware that not only are you in the hands of a new medical professional, but you
are entering what may seem like an entirely new culture full of people who speak
a new language. (For a crash course in the language, see the glossary in the
appendix.) There is much to learn about your particular cancer, of course, but
that is just the beginning.
What’s next?
- Tests to take
- Treatments to undergo
- Side effects to endure
- Strategies to implement to manage
those side effects
More specifically, just to give you a few
examples, you will find yourself wondering about the following:
- Your blood cell count
- Survival statistics
- How radiation works
- Long-term effects of chemotherapy
- How to avoid nausea
- Where to buy a wig
- Long-term effects of radiation
- How to care for your skin
- Clinical trials of new and
(potentially) better treatments
And that’s just part of your new culture!
Sound confusing? That’s why you have this book: the full edition of
Chemotherapy and Radiation for Dummies. We walk you through every step. But
first, we have some advice. While you are learning the new language and sorting
out your place in the new culture, you also want to keep your eye on the future.
Tip
When you have a treatment plan in place, grab a calendar and mark on it the
proposed schedule for your chemotherapy and/or radiation treatments. Seeing
exactly how long all this will take also allows you to see all those dates left
on the calendar after treatment, when your life will once again be your own.
Considering Options
Coping with cancer is all about options,
treatment options, choices regarding delivery of treatments, and the possibility
of participating in a clinical trial. You may also seek information on bone
marrow and stem cell transplants. Following are a few starting points for
helping you choose your path.
Understanding chemotherapy and radiation
Medical science is currently learning about and testing some ways to turn
off the misguided cells that undergo a mutation and get busy transforming into
cancer cells that attack the body. Today, chemotherapy and radiation are the
time-tested standard treatments for most cancers. Many people diagnosed with
cancer have both treatments, sometimes concurrently and sometimes one after the
other. Some people have just one.
Basically, most chemotherapy is
systemic; it involves any number of anticancer drugs that sweep through every
cell in the body. In contrast, most radiation therapy is local or regional,
meaning treatments are aimed specifically at the site of a tumor or at nearby
places the tumor may have spread. That said, though most chemotherapy drugs are
delivered directly into a vein, some are injected into a muscle or a tumor. Some
chemotherapy drugs even come in pill form.
How do these two treatments
work? The full edition of
Chemotherapy & Radiation For Dummies discusses more
than half a dozen different types of anticancer drugs as well as the two main
types of radiation therapy (external beam radiation and brachytherapy). Refer to
the full retail version for details.
Tip
Sometimes your doctors provide you with information and allow you to decide
which treatment to pursue. Don’t hesitate to ask what choice the doctor would
make for a family member because that may help you with your decision.
In any
case, carefully evaluate the benefits and risks of all your treatment options.
The decisions you make today may well affect the rest of your life.
Remember
Treatments for life-threatening
diseases often carry long-term physical costs, such as decreased organ function
now or increased risk for other diseases ten years down the road. Paying the
price is always easier if you are well-informed before you begin treatments.
Looking into clinical trials
One important option to consider is
whether to participate in a clinical trial. These trials, or tests, of new
treatments or new combinations of tested treatments lead the way in cancer
research. That means the participants in clinical trials are on the cutting edge
of medical science. You may want to ask your doctors about possible trials for
your situation, as well as asking questions about reports you may read from
participants who have chosen to be part of clinical trials.
Taking a
chance on a transplant
Sometimes, in cases where cancer does not respond
completely and permanently to standard treatments, doctors recommend bone marrow
and stem cell transplants. This is serious stuff, medical miracles of the first
order, or so we hear from individuals whose lives have been saved as a result of
a transplant. Check out the full edition of
Chemotherapy & Radiation For Dummies
for everything you need to know about the purpose of transplants, the different
types, how transplants are done, what to expect afterwards, and how to prepare
yourself emotionally.
Exploring virtual
chemotherapy
There is
nothing like the real thing, of course, but by reading the info in this section,
you come as close to experiencing chemotherapy and all the side effects as you
can without actually feeling the powerful anticancer drugs drip into your body.
Getting Started on
Chemo
That first day of chemo, as fearful as it seems in the anticipation,
most often doesn’t turn out to be as bad as you may expect. Remember, you don’t
have to go through cancer treatments alone. In the full version of
Chemotherapy
& Radiation For Dummies, we go so far as to recommend what to eat for breakfast
and what to wear! The full edition also clears up misconceptions about when to
take anti-nausea medication and offers suggestions on how to get the support you
need from family and friends as you go through treatments.
Taking care of
your immune system
Because anticancer drugs kill healthy cells as well as
diseased cells, you are particularly prone to infection while undergoing
chemotherapy. That’s bad, because you simply won’t have the resources to fight
off bacteria that means to do you harm. The good news is that doctors can
prescribe immune and bone marrow stimulants to help boost your immune system and
help your body fend off infections. In addition to medical interventions, the
full edition of
Chemotherapy & Radiation For Dummies outlines plenty of
preventative measures that you can take to help protect yourself.
Signing up for side effects
Even people who have never known anyone
diagnosed with cancer seem to know a complete litany of the side effects that
accompany this powerful head-to-toe therapy. Never mind that many people taking
anticancer drugs are troubled by just a few side effects, and some of those to a
limited degree. Everybody wants to get into the act! Here are just some of
the side effects you may experience:
- Nausea
- Fatigue
- Neuropathy (nerve damage)
- Mouth and throat sores
- Depression
- Infertility
- Temporary hair loss
Remember
Don’t panic and assume that you will experience every possible side effect known
to result from chemotherapy. Every person experiences cancer treatments
differently, but no one person is likely to be troubled with every side effect
from any one treatment.
No matter which specific side effects you must
endure, in this book you find plenty of practical suggestions on how to manage
them.
Trying on Radiation
Therapy for Size
This section offers some handy information on what
to expect from radiation therapy.
Getting set up for the first
treatment
In the full edition of
Chemotherapy & Radiation For Dummies, you can read all about how radiation
therapy is devised specifically for your body. You discover that undressing for
the therapy takes longer than the therapy itself. And, we make suggestions about
how to care for your skin. If you are looking for ideas on how to get the
support you need from family and friends, we provide them here.
Managing side effects
Contrary to popular opinion, people who
undergo radiation therapy are every bit as subject to side effects as people who
undergo chemotherapy.
Here are some of the typical side effects from
radiation therapy:
-
Fatigue
-
Reddened skin
-
Inflamed mucous membranes
-
Diarrhea
-
Nausea
-
Lymphedema (swelling of an arm or
leg because of fluid accumulation)
-
Permanent hair loss
-
Depression
Remember
Just because we provide this list of
possible side effects, it does not mean
that you will experience every one. Each
person responds differently.
Putting Together a Support Team
A recurrent theme in this book is
the importance of putting together a
support team to help you get through
cancer treatments. Some teams are small,
tight circles of medical professionals
and family members. Other teams may be
much larger and include all manner of
healthcare professionals, spiritual
advisors, and members of support groups.
We take a look at all these
possibilities in detail in this section.
Regardless of the size of your team or
whether you all choose to wear matching
T-shirts or baseball caps, having a
support team is an important success
strategy.
Making room on the
team bus
Let the doctors sit
at the front of the team bus, right
behind your immediate family and dearest
friends. Who comes next? Perhaps a
psychologist, if you think you would
benefit from that type of help. Next, we
propose that you consider looking at a
number of complementary therapies that
may help you reduce stress as you go
through treatments. Practitioners who
provide these therapies include:
-
Massage therapists
-
Yoga teachers
-
Reiki practitioners
-
Tai chi instructors
-
Meditation instructors
-
Fitness experts
Now, you may be interested in working
with only one or two of these
individuals, you may not have the time,
energy, or funds to take on any more. We
encourage you to do that.
Tip
Let’s face it: Cancer increases
stress at both emotional and physical
levels. Sometimes, a little body work
from a certified practitioner is just
what the doctor ordered.
Practicing Good
Nutrition
Both chemotherapy and radiation
therapy can cause changes in your eating
habits, for a variety of reasons. In
some cases, the treatment itself is
responsible. In others, fatigue from the
treatments can leave you too tired to
eat. That’s bad, because good nutrition
is especially important during cancer
treatments. Here are some reasons why:
-
Eating well helps you keep your
energy up.
-
Good nutrition helps you manage side
effects.
-
A
healthy diet can help your body fend
off infection.
Good nutrition is important, you may
want to add a registered dietitian to
your support team. If you opt not to
do that, we recommend a nutritious diet.
The full retail edition of
Chemotherapy & Radiation For Dummies
brings you up to speed on the latest
scientific thinking on protein,
carbohydrates, fats, vitamins, minerals,
and fluids, at least in regard to
nutrition during cancer treatments. We
also outline for you exactly what
nutritional effects specific cancer
treatments may have on your body.
Tending to Your
Spirit
Making room in your life for a
cancer diagnosis almost always also
means asking yourself some of the really
big questions, questions most often left
to philosophers and spiritual leaders.
Some of these questions include:
-
Who am I?
-
Why am I here?
-
What is my purpose?
-
Why did I get cancer?
-
Will cancer kill me?
-
What is the point of living in a
world where there is cancer?
These
questions can lead to a great deal of
stress, which can evolve into losing the
will to go on or even to a complete loss
of faith in the future. This is known as
spiritual distress.
Who do you
call in this situation? Be sure to bring
up this topic with your doctors. Prayer
and meditation are also ways to reduce
spiritual distress. You may want to add
a spiritual leader to your support team
if you are so inclined.
Finding support from strangers
Sometimes, people going through
cancer treatments find that their daily
concerns, complaints, and fears may wear
out some of the “inner circle” members
of the support team. Sometimes, you can
find a certain freedom and acceptance
from a support group that can’t be found
anywhere else. Is a support group right
for you? It’s worth investigating those
in your area.
Support can come
from many or one, and you can meet at a
hospital, in a church, in a freestanding
community center or in your own home,
sitting at your computer. Check out the
full edition of
Chemotherapy & Radiation For Dummies
to review the benefits of being part of
a support group, as well as the risks.
Looking Beyond Cancer Treatments
When you’re in the middle of
chemotherapy or radiation treatments,
sometimes it seems that this particular
journey will never end. It will, of
course, and in this section you discover
what to expect when that happens. As at
the end of any meaningful road, you’re
likely to find several forks. In this
case, you may want to explore lingering
physical side effects of cancer
treatments, the possibility of
recurrence, and some emotional
adjustments that are often required
after treatments are complete.
Beginning Anew
Don’t for a
minute expect that you never need darken
your doctor’s door after the last of
your cancer treatments. On the contrary,
you will be carefully monitored for
years to come. In time, you’ll even
appreciate that fact.
Ask your
doctor what to expect in terms of
follow-up care, regular checkups and
periodic screening tests. Also, you can
look over a list of long-term side
effects that may or may not trouble you.
That list includes such physical
problems as the following:
-
Fatigue
-
Pain
-
Lymphedema
-
Oral problems
-
Bladder and bowel problems
-
Early menopause
-
Infertility or impotence
Ultimately, you want to craft a personal
wellness plan to see you through the
years to come.
Returning to Square One
Some
people finish cancer treatments and
never have to confront this particular
disease again. Sometimes, unfortunately,
that’s not the case, if cancer recurs
months or years after treatments end. If
you’re tempted to avoid this section
because you expect only the worst, think
again.
Remember
In many cases, a recurrence can be
treated as a flare-up, and cancer can be
considered as a chronic disease. In
the full edition of
Chemotherapy & Radiation For Dummies
we lay out a plan of action, should your
cancer recur, and we also explain
several reasons why the second time
around may not be as trying as the
first. If recurrence is as bad, or even
worse, look here for information on
palliative care and an explanation of
the mission of hospice.
Making Peace with a New You
After cancer, nothing is ever really the
same again. Even if you’re not troubled
with long-term physical side effects as
a result of treatment and even if your
cancer never comes back, you’ll likely
find that you are different emotionally
and that your standard mode of operating
in the world has changed. With help from
your support team, you can define
yourself anew after cancer.
This
is the time that you get to decide all
over again who to be, what to say about
yourself, and how to make changes in
your life that reflect your new
perspective on the gift of time. Look to
the full edition of
Chemotherapy & Radiation For Dummies
for more tips on how to protect yourself
as you head boldly into your brave new
world.
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